[vc_row][vc_column][vc_column_text]Hi, my name is Demelza and I’m the founder of this website. I’ve struggled for years with my own health – with fatigue (despite keeping very active with dance and fitness during my 20s) as well as other issues such as passing out ‘randomly’, gastro problems and other random things like Reynauds. When I turned 30, I went downhill very quickly and spent the next 3 years searching for a diagnosis while my health continued to deteriorate. After many tests coming back negative and the doctors throwing up their hands, not knowing what to do, I was finally diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) by a neurologist in London in the summer of 2015.
I understand what it’s like to live with an undiagnosed illness that no one could really understand, including myself. I know how important it is to have a ‘label’ so that I know what it is I’m dealing with and others can understand better what I’m dealing with too. I know the frustration of dealing with doctors who don’t seem to be that interested in getting to the bottom of the problems since I wasn’t an ‘easy’ case. I know what it’s like to look for alternative treatments to manage symptoms due to sensitivities to medications (or not being prescribed meds initially).
I understand the grief that a person goes through when losing the ability to do things that used to bring pleasure. I understand that feeling of frustration when no longer being able to do even basic things, or they become a major deal to accomplish. I had to come to terms with not being able to commit to things anymore because I wouldn’t know if I’d be well enough and would have to see how I was doing at the time and have backup plans in place. I’ve had to give up my old work dreams/goals and re-evaluate what I can cope with doing from home. I’ve had to accept I can’t be the active wife that can take care of things around the house all the time and the impact that has on my husband. I’ve had to work through severe depression and feeling alone and overwhelmed.
Due to some treatment to manage my symptoms, I’m doing better than I was when I could barely read a Facebook message due to visual over-stimulation and lack of focus with extreme fatigue. I was pretty much house-bound and lying down the majority of the day and I was needing a wheelchair to go out on occasions. However, the improvement I’ve seen now means I can focus much better and, while I’m not ‘well’, I can now resume some more normal activities and I actually do get tastes of what it’s like to be ‘healthy’ at times for which I’m thankful.
Out of this background, the idea for this website was born. The goal of Health Warriors is to provide hope and encouragement, tips and laughter, to all of us with chronic illnesses and disabilities (whatever they are), as well as those who care for us, so that we can together make the most of life regardless of limitations and struggles.
The tone of this site aims to be from a biblical worldview. Although not every article will be explicitly biblical, there will be some that are very much so. Please be aware that this is not to sideline people of other religions/beliefs but to be of particular encouragement and help to those who claim the Christian faith since we believe that our ultimate hope and purpose is in Christ – something that’s really important when struggling with chronic illness. If this is not your belief, then feel free to ignore those aspects of the articles written. However, it’s my hope that you’ll also find encouragement and hope through what’s written whether explicitly biblical or not.[/vc_column_text][/vc_column][/vc_row]